Hey everyone (cue the chirping crickets)! I have news! I have developed Transient Radiation Myelopathy. Here’s the scoop:
A few weeks ago my legs started feeling weird. By weird I mean that it felt similar to when you hit your funny bone, except it was in my legs (thighs / hamstrings / radiating into my calves). It was not pins and needles. It was not numbness. It was also not in my feet. It’s not even what I would call painful. Just weird, and very unpleasant. All of these “not’s” made it so the symptoms didn’t match up with peripheral neuropathy (my doc told me I’m at risk for that from the chemo).
So of course I immediately turn to my friend/enemy Google and start searching for diagnoses. I also call up the chemo doc. They’re not sure what to think. They told me to keep an eye on it and check back in. So that’s what I did. The symptoms got a bit worse and I noticed a few things:
- I get the funny bone feeling when I bend my head down.
- I get the funny bone feeling when I exert myself (even a brisk walk is enough to do it).
So I google these little symptom tidbits and came up with “Lhermitte’s sign.” I continue to google and came up with “Radiation Myelopathy.” Turns out there are two kinds of Radiation Myelopathy. One that goes away (transient) and one that is incurable and can result in paralasys. So… like usual Google provides me with the typical answer of “either you are fine, or you are very seriously ill.” I know I should have learned my lesson by now with Google and symptoms.. but ya know.. I haven’t.
I then give my radiation doc a call, describe my symptoms, and they know exactly what’s going on. They tell me how to properly pronounce “Lhermitte’s” and tell me that I have the transient variety. It will go away. And I was able to semi-accurately diagnose myself using google.